Thursday, September 24, 2015

Surgery Prep Day

Well, we made it to the hospital today.  Which is a great feat after the night we had with Ezra.  I think he just knew I'd be away from home for awhile.  I couldn't get that child to sleep until 10:00pm!  Which is incredibly out of character for him.  And then he decided to be up from 3:00 to 5:30am as well.   Just wide away trying to hang out with me.  He screamed his head off for Dave or if we left him in his crib.  But if I had him with me, he just wanted to snuggle and kiss me.  "Mom. Big, big, big hug.  Momma.  Big tiss."  So that was exhausting, but it was survive-able.

Then today we got called at 8:30am saying his bed was ready.

We stopped by dad's school before the hospital.  He sat on this
bench and said, "Take my picture!"  He was PUMPED about going to the hospital. 

And again with the bench.  This time in the pedestrian bridge over to the hospital.  

A big fan of the tiger jammies and footie socks.  

Lots of waiting before the tube and IV. 



So now we're here.  It's 5:00.  Kyrie has had the tube put down his nose and throat, and also gotten his IV.  Both were incredibly traumatic.  Which is what they were the first time as well. So I was ready.

Except this time David could not be with us.  And my belly is much larger which makes it harder to hold and snuggle a thrashing, fighting four year old who doesn't actually want a tube crammed down his nose and throat, or needles in his arms.

And this time there was vomiting.  So that always adds in a fun twist.

The after.  This towel hasn't left his face.  He's scared to throw up again. 
He is asleep now.  And I'm so thankful.  Hopefully this will help him get used to the feeling of the tube.  Which is gagging him more than the last time around.  We've both been through a change or two of clothes, and it would be nice if that hurdle was done with.  But if its not, it's okay too.  It doesn't bother me.  It just bothers him.  So I guess that part bothers me.

And finally snoozing.  So glad he can get some rest after the exhausting ordeal!
I've felt so blessed by friends, coworkers, and family.  My phone has been blowing up with supportive emails and texts.  I wouldn't have eaten anything today, except that one friend sent me with a gift bag full of snacks.  Multiple people have sent toys and activities for Kyrie, which have already saved the day.  I'm so thankful for the "village" that is taking care of us right now!

I think we'll be in for another sleepless night though.  And that is hard on me emotionally.  Kyrie will hopefully do great.  But he's getting pumped full of something called "go lightly" which makes kids do the exact opposite of what it's name suggests.  I'll have to empty his colostomy bag pretty regularly.  But again - this is no big deal.  The last time we went through this same process, he could not pass anything.  And it led to a lot of awful stomach aches, enemas, and hysteria all around.  This time that will all be avoided with the colostomy.  And hopefully all fixed up after surgery.

But no sleep two nights in a row makes me weepy when I'm not 8 months pregnant with one of my babies in surgery.  So tomorrow will be a sob fest I'm sure.  Not in front of my little man.  But probably through the surgery.  Which is totally cool because the waiting room for surgery has been pretty busy for the last 2 surgeries.  And we don't really have a time frame for the surgery. "Through the morning and much of the afternoon."  Which I'm pretty sure is a LOT of hours.  I am confident in our surgeon though.  And he said to me, "I don't watch the clock.  I just take care of Kyrie in surgery."  Which is what I want.  There should be no time limit on making my boy healthy.

Pray for my sweet boy and his surgeon.  His surgery is scheduled for 10:00am.  I'll be sure to update tomorrow.  Maybe twice.  I'll have nothing to do while I'm all cry face during surgery so maybe I'll just type.


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