However, tonight we had to change it, and while there was a lot of tears in anticipation, I think we may have finally come up with a strategy that works for us. I started saying, "1, 2, 3, Peel... 1, 2, 3 peel.... 1, 2, 3, peel....etc." and he is ready for the pull of the adhesive. It take a lot of 1, 2, 3s, but he didn't cry during the peeling!! It was amazing. I'm so hopeful that this can be the new thing.
I'm also hoping that I get better at applying it so it doesn't come off quite so quickly.
Aside from our progress there, we have so much to celebrate. The biggest thing is that Kyrie is healthy today. The colostomy bag helps his digestive system work properly, which is hasn't done in four years. So that is HUGE! Because of this, his appetite is slowing growing, and my picky little bird eater is turning into a picky little regular amount eater.
My boys are all under one roof. You will not believe how much they missed each other! Seeing them reunited is incredible. Kyrie got the spark back in his eyes, and the silliness came back in his personality. The first night home, the boys stayed up WAY too late chatting away in their bed about lots of four year old nonsense. Drove me crazy because I knew my Kyrie needed the sleep, but seriously? Those boys are just too stinking cute for their own good.
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| These three. |
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| Can NOT keep this man out of the water. |
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| Quiet time while Bez sleeps. |
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| Lots of pajama time over here. |
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| Out of the house!! Strawberry fields forever :) |
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| These two rarely leave each other's sight. |
The support we've had so far from our friends and family is too much to even describe. Between our family members, friends, and church members, I haven't cooked since we've been home. This has been such a huge blessing to us. I've been able to spend time with my three boys, which our family has desperately needed. Kingston and Ezra are particularly needy with David and me having been gone for so many days. I've been able to take the time I need to learn how to care for Kyrie's stoma. I've been able to spend time doing things I really don't care to do - like figure out insurance nonsense and call his different physicians. Our medical delivery company has been delivering packages daily to our house. They are quick and that is awesome. But new supplies are brought each time, and this only adds to the learning curve of Kyrie's stoma care. And I've needed to be on the boys pretty much all day to settle down and stop attacking each other because Kyrie is still healing. The meals have been such a blessing. People stop by our house to drop off cookies. Our neighbors brought the boys a gift just today. David's staff sent us a beautiful care package with fresh fruit, gift cards, snacks, and and activities for the boys. We've received countless gift cards and encouraging notes. People have emailed, and commented on Facebook. These little things have lifted us up and carried us through some of the toughest days we've had.
And my Kyrie. What a little trooper. Put me in his shoes and I would've been in bed for a week. I would've cried over the colostomy. I would've been in pain for days. I would have been a big wreck. A baby. A total whiny mess. But my boy is so strong. No complaints besides minor aches and pains from the time we walked in our door. He's struggled with the adhesive changes, but right after my sweet boy bounces back. He plays so hard and has been dying to go in the water all week. He could care less about the stoma and does amazing when I have to empty or check it out. I treat him like more of a patient than I need to. He's amazing and resilient. I'm so proud of him. He's such an incredible little boy.
We're getting back into our new normal around here and it feels really good. David is done with work now, so I have my partner full time. Kyrie is acting like his normal self, and my family is all under the same roof. We're healthy, and safe, and have a brand new healthy baby girl on the way. Things are good. Things are really good.
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